Katherine R. McCurdy
Fundador en The Barth Syndrome Foundation, Inc. .
Cargos activos de Katherine R. McCurdy
Empresas | Cargo | Inicio | Fin |
---|---|---|---|
The Barth Syndrome Foundation, Inc.
The Barth Syndrome Foundation, Inc. Miscellaneous Commercial ServicesCommercial Services The Barth Syndrome Foundation, Inc. is a non-profit organization that focuses on Barth Syndrome, an ultra-rare genetic condition that primarily affects males. The private company is based in Larchmont, NY and was founded in 2000 by Katherine R. McCurdy. The condition is characterized by cardiac abnormalities, exercise intolerance, muscle weakness, severe fatigue, recurrent infections, and delayed growth. The foundation aims to raise awareness about the condition and fund research to find a cure. There are currently no FDA- or EMA-approved therapies for patients with Barth Syndrome. | Presidente | 01/01/2000 | - |
Fundador | 01/01/2000 | - |
Historial de carrera de Katherine R. McCurdy
Estadísticas
Internacional
Estados Unidos | 2 |
Operativa
Chairman | 1 |
Founder | 1 |
Sectorial
Commercial Services | 2 |
Funciones ocupadas
Activas
Inactivas
Empresas cotizadas
Empresas privadas
Empresas relacionadas
Empresas privadas | 1 |
---|---|
The Barth Syndrome Foundation, Inc.
The Barth Syndrome Foundation, Inc. Miscellaneous Commercial ServicesCommercial Services The Barth Syndrome Foundation, Inc. is a non-profit organization that focuses on Barth Syndrome, an ultra-rare genetic condition that primarily affects males. The private company is based in Larchmont, NY and was founded in 2000 by Katherine R. McCurdy. The condition is characterized by cardiac abnormalities, exercise intolerance, muscle weakness, severe fatigue, recurrent infections, and delayed growth. The foundation aims to raise awareness about the condition and fund research to find a cure. There are currently no FDA- or EMA-approved therapies for patients with Barth Syndrome. | Commercial Services |
- Bolsa de valores
- Insiders
- Katherine R. McCurdy
- Experiencia