Florence Mannes

Director/Miembro de la Junta en The Barth Syndrome Foundation, Inc. .

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Florence Mannes currently works as a Director for The Barth Syndrome Foundation, Inc.

Empresas	Cargo	Inicio
The Barth Syndrome Foundation, Inc. The Barth Syndrome Foundation, Inc. Miscellaneous Commercial ServicesCommercial Services The Barth Syndrome Foundation, Inc. is a non-profit organization that focuses on Barth Syndrome, an ultra-rare genetic condition that primarily affects males. The private company is based in Larchmont, NY and was founded in 2000 by Katherine R. McCurdy. The condition is characterized by cardiac abnormalities, exercise intolerance, muscle weakness, severe fatigue, recurrent infections, and delayed growth. The foundation aims to raise awareness about the condition and fund research to find a cure. There are currently no FDA- or EMA-approved therapies for patients with Barth Syndrome.	Director/Miembro de la Junta	-

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Empresas privadas	1
The Barth Syndrome Foundation, Inc. The Barth Syndrome Foundation, Inc. Miscellaneous Commercial ServicesCommercial Services The Barth Syndrome Foundation, Inc. is a non-profit organization that focuses on Barth Syndrome, an ultra-rare genetic condition that primarily affects males. The private company is based in Larchmont, NY and was founded in 2000 by Katherine R. McCurdy. The condition is characterized by cardiac abnormalities, exercise intolerance, muscle weakness, severe fatigue, recurrent infections, and delayed growth. The foundation aims to raise awareness about the condition and fund research to find a cure. There are currently no FDA- or EMA-approved therapies for patients with Barth Syndrome.	Commercial Services

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