Jasson Gilmore

The Sturge-Weber Foundation is an international nonprofit organization dedicated to improving the quality of life and care for individuals affected by Sturge-Weber syndrome and related conditions such as port-wine birthmarks and Klippel-Trenaunay syndrome. The private company is based in Mount Freedom, NJ. The foundation serves patients, families, and professionals through education, advocacy, research, and support services, and operates a clinical care network of specialized centers providing multidisciplinary care. It offers resources including educational materials, support, scholarships, research opportunities, and mental health resources, and organizes events to foster community engagement and promote understanding. The foundation supports research initiatives through collaborations and provides tools such as a mobile app for tracking medical events and medications. Advocacy, fundraising, volunteerism, and legacy giving are also part of its mission. The CEO of the company is Karen Ball.